How many times do you guys have to be chased butterflies in the meadows. See them flutter trying to grab them to watch them closely and see the beautiful colors that "Mother Nature" has imprinted on their fragile wings. You are able to grasp one, keep it prudently for the wings laid it gently on the palm of your hand to scrutinize closely the varied beauty of the colors ... trying not to creasing ... and then always with the palm of his hand you decide to let her go on her back ... to fly among the flowers of the meadow. With an open palm gesture and the throwing up. Alas, despite your kindness, you made the biggest mistake for him! Stay surprised to see that the butterfly is not weak as it flies around, has remained on your hand that you had lovingly toward it without them in the slightest damage to its fragile structure. This is because nell'afferrarla has removed the powder that you have left from your fingers! The butterfly can not fly anymore, his fate is sealed ... there is no remedy! It is not the moths that means speaking questo'articolo, although it was designated a name similar to the children, the so-called: Butterfly Children. These are children who suffer from a rare genetic condition called Epidermolysis Bullosa (EB), in the world are more than 500,000 of which 1,000 only in Italy. Named for the fragility of their skin is similar to the wings of the butterfly. A simple and loving caress is likely to hurt them, can not do the simplest daily activities like walking, eating or simply getting dressed. That's if they survive, but as soon as born? Parents can not move without the bruises to affect it, they can not embrace them with love that would always constantly against their long and painful daily dressings. These are the Butterfly Children. The non-profit organization Debra Italy, consists of a group of parents in 1990, is aimed entirely at no profit to aid, to ensure services and support to patients and their families in medical care for the welfare of the sick and spread the professional knowledge to the media and elsewhere, the disease of E B. With this preamble, and, from an idea of Moreno Stefanini, has organized a show in favor of Debra's and Children's Butterfly at Teatro Polisportiva High Toll in Castiglione Torinese, in the room the lights go down giving space to the screen, showing disturbing images of how their day was told by anguished mother with eyes full of tears! E'uno of the many ways to raise public awareness, certainly the evening goes to charity is not on this issue but with the talented singers, Mattia Inverni, Valentina Tesio, Fabrizio Voghera, Sergio Moses and Sergio Stefanini that together have the same enthusiastically embraced the cause of singing songs, running stills from major musicals such as Notre Dame, Moulin Rouge, Romeo & Juliet, Dreamgirls, The Ten Commandments, The Divine Comedy and more. A delightful musical show, pleased the public spoke at the point of asking all singers to give an encore, the interpreters have refused, even acceptable and, perhaps going home continues to reflect some of those present.
Turin (Italy), May 17, 2012
(The articles was translated with Google translator)
